To all my friends and supporters....I will be participating in the 2023 Project ALS Don't Talk a Thon #dtat2023 #silenceALS
I wanted to write and fill you in on a special initiative that I am taking part in…the 2023 Project ALS “Don’t Talk a Thon” fundraiser #DTAT2023 #silenceALS and my personal fight for a cure on behalf of all those who have had their voices silenced due to ALS, but not their will to keep fighting. This will be my fifth year taking part of this special mission with Project ALS, and my 13thyear supporting Project ALS.
ALS, also known as Lou Gehrig’s disease, is a brain disease that targets brain cells called motor neurons. Motor neurons send messages from the brain to muscles throughout the body. In ALS, as motor neurons die, a person progressively loses the ability to walk, speak, swallow, and breathe.
Having lost my mother Lillian and many other close acquaintances to this dreaded disease, my life was directly impacted by this disease in which there is no cure to help our loved ones who suffer. I started my original music project www.guitarforacure.comand have been a top independent 501c3 for Project ALS since 2008 donating 100% of all my music proceeds to www.projectals.org. Over the years, I have partnered with my dear friends Valerie & Meredith Estess, co-founders of Project ALS, on so many special events and spreading the word on why finding a cure is so critical. On Sunday May 21st, I will take a vow of silence for the day in memory of those who are fighting for a cure and those who have passed from ALS. For many, losing their voice to this disease doesn’t stop their fight. For those who know me, this charity holds a very near and dear spot in my heart and any dollar gets us one step closer to my personal goal for this year’s event.
Helping Project ALS is as critical as ever right now as they focus on the continues studies of the drug treatment for ALS called Prosetin.Developed by Project ALS at Columbia, Prosetinhas proven to reverse cells known to be a blocking agency for the progression of ALS.More recently, Project ALS is using specific genetic tools to develop anovel mouse modelthat better replicates ALS disease progression in people and allows more rapid diagnostics and therapy testing in the lab.The passion and determination to continue the medical advancements within the labs of Project ALS in endless ~ PG
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